tag:blogger.com,1999:blog-3753922795485552054.post7685315123536187297..comments2024-03-12T05:07:19.082-07:00Comments on Not so bright & Shiny: that’s IT!!!!!Sarahhttp://www.blogger.com/profile/07744754011059856264noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-3753922795485552054.post-44159920388759276172010-11-18T09:08:34.597-08:002010-11-18T09:08:34.597-08:00One of my childhood friends recently passed away f...One of my childhood friends recently passed away from CF. It was her mother who posted on her FB page the red roses for Conner. That was how I found you :). I am also the mom of a micropreemie with some developmental delays so I am all too familiar with the judgments made when you have a child with special needs. I have also been through the loss of a child, my dear son Noah. <br />I so agree with EVERYTHING you say Sarah!!! As moms we need to stop scrutinizing and judging each other. I so feel for Kayla. Usually I don't focus on a person's age because that in no way defines them as a person. However, for her to handle as much as she has to handle at 21. Wow. Those who judge Kayla should ask themselves what THEY were doing at 21, I for one was a little brat still living with my parents. <br /> I read her blog and I just feel so much for her and her family. CF SUCKS!!! (I would use more expletives here but I don't want to offend you or your readers. LOL). It is just awful how it takes these precious precious children away from their parents or so sick that often they can't enjoy a quality of life like the rest of us average folk can. They have to fight to breathe, where breathing is a privilege and not a right. Horrible.Amy, John, Sam, and Frankhttps://www.blogger.com/profile/09082023623444732116noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-61288665540700779502010-11-17T13:13:21.284-08:002010-11-17T13:13:21.284-08:00Love you sarah! Love love love YOU!Love you sarah! Love love love YOU!Anonymoushttps://www.blogger.com/profile/08931297334966057218noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-33367690488137419322010-11-17T12:18:17.607-08:002010-11-17T12:18:17.607-08:00Sarah, you say it so well. This goes for alot of ...Sarah, you say it so well. This goes for alot of things. We are all in this life to help others, not just for ourselves. It's not a competition but some people can't get over themselves. Doing things from your heart and out of LOVE is so imporant. Ths is exactly why I do what I do with PBSN. It's a true genuine caring to help others not go through this alone. Respect and maturity need to be present with all of us in all facets of life. Thanks for telling it like it is. Your words are perfect, as always. HUGS!!Anonymoushttps://www.blogger.com/profile/10787384058744118554noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-1995126935215991942010-11-17T11:57:53.254-08:002010-11-17T11:57:53.254-08:00Hope the drama and BS subsides, it is truly a sham...Hope the drama and BS subsides, it is truly a shame. We shame our creator, when we behave this way. Yes, we are all imperfect persons and we will(not might) make mistakes and hurt people with our words or actions, unintentionally. It is our obligation to God, that we think before we speak and try our best to treat others as we would like to be treated, and repair any damage or hurt that we may have unintentionally created...The Golden Rule! Those "intentional" cuts and negatives, well shame on those perpetrating them!Unknownhttps://www.blogger.com/profile/10869260178238760833noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-65869210757740667752010-11-16T20:12:22.430-08:002010-11-16T20:12:22.430-08:00You know my thoughts on this, as I was just ventin...You know my thoughts on this, as I was just venting a couple of weeks about this same subject! UGH! FOR REALS! I only want to be judged by one... and that one is Jesus Christ himself at the time that I walk through those beautiful pearly gates. Until then get over yourself people. <br /><br />Lets unite and hold each other up. <br />Lets band together and help raise awareness and get a freakin cure. <br />Lets LOVE one another for the sake of all these little children and adults with CF that struggle to breath every single day.<br /><br />No one has ever walked in my shoes. And I certainly do not judge my neighbor as their shoes wouldn't fit me either....<br /><br />Sarah... as always you your beautiful family are in my prayers, and Kayla and her sweet family are right there beside yours!<br /><br />LOVE LOVE LOVE!!!!<br /><br />-BethAnonymoushttps://www.blogger.com/profile/14067969201830825757noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-5923090633448608582010-11-16T19:42:24.914-08:002010-11-16T19:42:24.914-08:00Amen dear! AmenAmen dear! AmenJesshttps://www.blogger.com/profile/10862608934372785897noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-33678922229338530172010-11-16T19:18:39.956-08:002010-11-16T19:18:39.956-08:00It's all about love and support. I just sent ...It's all about love and support. I just sent Kayla a message basically saying what you just said. I don't know either of you personally, but I do know I have a son with CF with multiple other issues with way to many hospitalizations. I understand that part, but we can truly never understand someone else's feelings we can only support and love each other.<br />Kim ElliottAnonymoushttps://www.blogger.com/profile/02886847677921077923noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-37827024595115777072010-11-16T18:51:18.373-08:002010-11-16T18:51:18.373-08:00I agree with Jenny, you have such a way with words...I agree with Jenny, you have such a way with words. Your messages are wonderful and beautifully written! I also agree with your message very much, well said Sarah!Samhttps://www.blogger.com/profile/11873556217056434126noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-50940426929806318652010-11-16T18:40:10.224-08:002010-11-16T18:40:10.224-08:00You have such a gift Sarah. You really have a way ...You have such a gift Sarah. You really have a way with words. I couldn't agree with you more. Thanks for posting. ((Hugs))Jenhttps://www.blogger.com/profile/17013064697836797088noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-41785231788445916062010-11-16T18:24:29.163-08:002010-11-16T18:24:29.163-08:00I agree a million percent! I got more involved in...I agree a million percent! I got more involved int he CF community about a year ago and have had my ups and downs with being part of the community. As a blogger, I have heard people criticize words I've chosen to use, ways that I have described things. Some say I'm too negative, others that I'm too positive. I'm only trying to be real. Some of my experiences are sad and others are happy. Sometimes it does feel like High School. Everyone copes and deals with CF differently. I sometimes wish others would respect that and hold their comments. {{{HUGS}}}Staceyhttps://www.blogger.com/profile/08558341367213981372noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-80943380947612546332010-11-16T17:56:58.301-08:002010-11-16T17:56:58.301-08:00well said, *standing ovation*
I really dont have ...well said, *standing ovation* <br />I really dont have much else to say. everything that can be said has been said.<br />sending love and support to everyone and anyone who needs it <3Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-36208178132829979882010-11-16T17:43:15.529-08:002010-11-16T17:43:15.529-08:00Sarah, I believe I know at least part of what brou...Sarah, I believe I know at least part of what brought this on today... a certain situation on facebook, perhaps?<br /><br />I have a difficult time when I see people who are so quick to make judgement and find fault in one another. We are here to SUPPORT each other, not to be in competition. It's a shame when people lose sight of that. And, no matter what someone feels or thinks, in the end it all boils down to RESPECT. We need to respect each other as members of this community, as moms, as PEOPLE.<br /><br />Thanks, as always, for sharing your thoughts.Jenny Livingstonhttps://www.blogger.com/profile/03492192240694173631noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-54762354880255457452010-11-16T17:39:55.520-08:002010-11-16T17:39:55.520-08:00WELL SAID!!! It's hard to see that people can ...WELL SAID!!! It's hard to see that people can be so mean and cruel.. I have always been taught if you can't say anything nice then don't say anything at all. CF is hard enough to deal with, us parents with CF children and other with CF don't want the feel sorry for me story and we don't need the meanness... I hope things calm down for Kayla and all the others that may be going through this too.Mandiehttps://www.blogger.com/profile/13569663621678799608noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-10726428901939615212010-11-16T17:37:51.929-08:002010-11-16T17:37:51.929-08:00I'm friending CFers and their parents because ...I'm friending CFers and their parents because I want to find more ways to be part of the solution to fight for CF and make it stand for Cure Found. I friend them because I know there are chickens out there that don't know how to ask "can I write a letter for help for you." Its part of a legacy that I promised a little CF boy in a DQ I would lead to live for him since both him and his caregiving grandma were terminally ill. They both died within a year after I met them. The mother chickened out and is running a muck on drugs.. <br /><br />I agree that if you friend someone JUST because of CF then it IS not enough. If you want to join the CF Community to bring change, awareness, and raise funds for a cure then go for it... <br /><br />I'm still pretty peeved at that woman who I friended who faked having CF then said her bipolar gave her CF symptoms then publicly admitted to SMOKING!!!! ughh.. <br /><br />I agree with everything you said --- "THATS IT"!!!<br /><br />~Melissa Jones-WestonMrs. MisUnterstoodhttps://www.blogger.com/profile/18213052030097044750noreply@blogger.comtag:blogger.com,1999:blog-3753922795485552054.post-82657327340355342222010-11-16T17:31:45.821-08:002010-11-16T17:31:45.821-08:00WELL SAID. Of all things in this world that conne...WELL SAID. Of all things in this world that connect people, CF should never be something that connects people to tear each other down. :o( The disease itself does enough of that on its own. Makes me sad to hear that things of that sort are happening. Some people are catty & judgmental by nature, I guess... But that doesn't get you anything. Shame on them.Allisonhttps://www.blogger.com/profile/07573766189366503372noreply@blogger.com