My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!



Love Love Love

Always Always Always


Showing posts with label inspiration. Show all posts
Showing posts with label inspiration. Show all posts

Thursday, May 13, 2010

pain by any other name wouldn't be as sweet...

So enough has been enough.
i feel like i am swimming in this huge pool and can't find my way out of it....but the pools not filled with water...it's filled with my tears. my heartache. i'm just broken. i've never been one to wear all of my emotions on my sleeves, not that i was too proud or embarrassed to but simply because I still have 3 children who come with lots of responsibilities, projects, dressing changes, diapers, groceries and house cleaning to boot. Never really had time to wallow. But well i guess i don't feel i'm wallowing. maybe thats not the right word.
grieving.
I hate that word. it means so many, many things. and at so many different times as well. my grieving sometimes is laughter and smiles cherishing the moments i'm engrainging in my memory to remain there all my life with bittersweetness in those moments...and sometimes i'm just tripping on my bottom lip. i literally can't pull it up to where it should be. my smile has really faded. my heartache has nearly multiplied by a thousand. my days it seems now pass by so much quicker because Im so aware of each and every second passing by. Time is running out. but my love isn't. i feel now more than ever that i truly know what it is to love my children and to love my husband. i KNOW it now. not just that giddy feeling you get, or the instant love you feel when you first hold your precious newborn in your arms...but the deepest love you can ever imagine, but that you can never imagine until you're watching it slip away. faced with death, you really learn to love. fully. wholly. unconditionally. deeply. selflessly. painfully.
i simply haven't been able to write lately. since mothers day i've been struggeling. i'm just not me right now..only i am me. a new and different, grieving me. a me, i don't really like. and i don't blame others if they don't really like me right now either. i'm lonely. desperate. hopeful. wishful. exhausted. my mind is a wanderer lately. i hate this too. sometimes i sit in some line or in some crowd and i witness people being so rude, probably unintentionally...and sometimes i wish so much i could just scream...others have no clue what crosses you bear. if you didn't know my story, and you saw me, you'd see a somewhat put together woman, with a smile on my face and a joy and love in my heart...but you wouldn't have time to stop and see the agony in my eyes. going thru this has taught me so much. so so much. i will simply never be the same. and i hope for that in a good way. because this pain is so deeply intense, and everlasting as it may be, i know these lessons i'm learning as invaluable. and that i wouldn't have forced myself to learn them any other way. the greatest lessons from the greatest pains...makes perfect sense. cus now i get it. i just wish i could learn these lessons another way. any other way.
i've called to have the hospice team come over and give me their list of can and cannots...
that was an extremely difficult call to make.
but i think necessary.
my arms just ache to hold conner all day and all night. but i simply cant. i have come to need much time to myself. me and my ipod walking the beautiful lake here in town just allowing myself a breath of fresh air. i'm investing in my children who will be survivors. i'm trying desperately not to let the stress of all of this put a wedge in my marriage.
i'm simply doing the best that i can.
thats all we can do.
i think josh's message yesterday on whats inspiring really hit home to me. what i'm doing is not inspiring. at least not to me. but what is happening THRU my pain is inspiring....
well i'm off for now, a beautiful day here and conners calling for me to help build legos...
until next time...

Did You Know....

There are over 100,000 people, the size of a small city, on the transplant list in the US.

There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).

In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.

From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.

click here to join the organ donation registry

BECOME AN ORGAN DONOR, SAVE A LIFE!