Not so bright & Shiny: dnr

My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!

Thursday, April 15, 2010

a 7th birthday celebration

pictures speak better than any words ever could...here are a few from yesterday

father and son

honorary fire fighter of the day...and balloons in his favorite color

the firefighters brought him his birthday cake

and loves with mommy

We had our meeting with the doc today, Brad and i are filling out advanced directives and DNR forms today...and considering admitting him after his bday party this weekend and restart IV's and have meetings with hospice coordinators and social workers.
today his fever is still present. motrin seems to keep him comfortable. i am beyond exhausted at this point and am looking forward to a nap soon.
thank you all for your love and kind words and prayers. Each time I open my email I have over 500 new messages and thats about 3 times a day...so I haven't had time to go thru them all, so even though I know you don't, but please don't take it personally that I haven't gotten back to everyone. But know that I feel so much love and support...
pray.

Did You Know....

There are over 100,000 people, the size of a small city, on the transplant list in the US.

There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).

In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.

From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.

click here to join the organ donation registry

BECOME AN ORGAN DONOR, SAVE A LIFE!