My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!



Love Love Love

Always Always Always


Showing posts with label prayer. Show all posts
Showing posts with label prayer. Show all posts

Sunday, May 9, 2010

Ahhh it's over.


Please don't get me wrong. Usually I love mothers day. The weather today was beautiful, and I got to sleep in til 9:30am...it started so perfectly. My husband put the kids in matching outfits and they looked so adorable. Melted my heart. We went to Starbucks and they gave me a venti instead of my usual grande for free since I'm a momma they know and love (guess it pays to go there alot eh?) Then we headed to church.

Thats where the good day ended. No specifics even needed. I just felt broken. Have you been there? See all of this, I know I've mentioned before waxes and wanes...comes and goes. One second I'm feeling good and in control of my emotions then WHAM! a second later my world is caving in and it's everything I can do just to keep from crying. I can not recall a day where I've been this emotional, EVER. They prayed for Conner man, it's the first time he's been in so long since he's so fragile. so it's the first time in awhile they've seen him. and he now looks so frail and so tired of his fight. i just felt devestated. Like for the first time, others could genuinely see the difference because they don't see him day to day...and i was overwhelmed. I couldn't keep from crying during worship...we left church, did some mothers day stuff and i just could never really recover from that. Brad made bbq hamburgers, and then I grabbed my ipod and walked the lake a time and a half...so a little over 4 miles and each and every breath I breathed in was a struggle. not to breathe...but to keep from just busting out crying. I've never felt his way before.

I believe in Gods plan for our lives....I pray for Conner to have a long life, but I have to allow myself to be honest and realistic. I thank you all for your upbeat words and on normal days they get me thru.

But not today.

Probably not tomorrow.

He's dyeing. In front of my eyes, each day he wakes up weaker. His eyes are darker. his breathing a bit harder than the day before. and today it was simply too much to take. mothers day. for the first time today i think i really felt like i wished God would take me. Take me first. Because if this is the despair I feel already and my son is still alive, then I can only imagine how I will feel when God calls him home. and i simply can't handle that. i know i can't. because today proved how unprepared i truly am for all of this. losing a child is the most devestaingly painful, heartwrenching, blindly numbing pain that anyone in life can experience, and this i know for sure. and i have yet to even fully experience that. i've only delved into a few layers...not the whole pain. so i know for sure, that losing a mother, a brother, a grandparent or even a spouse simply can not compare. and i am scared to death to fully experience this pain. scared. to. death.

today leaves me so open.

so raw.

and so vulnerable.

with so many questions now to find answers for.

but more than anything I wish God would take me first. How parents get thru and survive losing a child is simply miraculous to me. I look up to them, to you reading this, so much. Because i honestly don't know if i can. but more than that, i don't want to. really. from the depth of my soul i don't want my son to die. i know i can't handle it.

my eyes are so heavy from the tears. my throat hurts from swallowing back the tears all day long. my stomach is flipping all around today. my heart is simply broken.

b

r

o

k

e

n


and I don't know if i'll ever be whole again after today. the first of many, i'm sure horrible days. so happy mothers day to all of you wonderful mommas out there with kids sick, healthy and in between the two. count your healthy days as blessings as i do...and to you mommas out there whose child has already lost that battle and is no longer alive to hold. i am so, so deeply and terribly sorry for your loss. words are of no comfort to you for this i know for sure. i pray for you each and every night for your strength, and for your broken heart to once again become whole. i wont pretend one moment that i know exactly how you feel, because i do not. not even close i'm sure. but this pain that i'm feeling today. right now. in this exact moment is so desperatley intense that i can imagine the pain you feel is just a thousand times greater than that. i am just so, so sorry for your loss. no mother should ever feel those feelings. no mother should have to go w/o hugging their loved ones tight and kissing them in the flesh...i too, know you will see them again when it is your time...but for now, until it is your time, i will pray for your strength and your brokeness every single time i pray.

tomorrow will be a new day.

and so for that...i am overwhelmingly greatful.

goodnight.

Wednesday, May 5, 2010

we're all made for more than we can see....

Hello.
It is Wednesday, Bingo day at hotel de-Doernbecher and it's on! Word got out that Conner man the bingo champ was back and so we've been challenged by many CF'ers to a duel! The bingo card has been delivered, we requested the winning card of course, and I feel we got it, because they handed us his card and a RED marker to use...so hello...red means we'll be victorious! Then it'll be school and then Kim in child life will be in to play. A fun day for sure.
We saw Dr MacDonald today, the oncall CF doc for this week and I told him we'd like to hopefully go home on IV's Friday since it's walk weekend AND mothers day (don't forget that!) and so as long as he responds well to his IV changes we'll plan on going home Friday. Good times. It's nice that they trust us enough to care for Conner man at home. I know they don't let everyone go home with IV's because some people aren't complient...so it's a big compliment when the docs let a CF family do that. a nice boost of confidence. and we all know CF parents need nothing more than encouragment and compliments on a job well done for what we get accomplished each day. So I appreciated that today. It's the little things that count.
My heart is pretty broken today. Im feeling pretty overwhelmed and fragile...so any prayers would be greatly appreciated. It's hard not to feel defeated and unappreciated sometimes in this fight. I'd like to also ask that you keep my husband Brad in your prayers as well as he could use all the support you can muster. This is a more difficult time in our lives then what shows. Brave faces become the "norm" and almost more important than the words that we do say, are the ones we don't have the heart to say. Unspoken words, unspoken feelings easily bring us down and make each day difficult. Our prayers as well, go out to each of you, for God giving us your amazing friendship and strength, His plans are to prosper us and not to harm or hurt us and seeing our despair it's easy to overlook the amazing blessing God is giving us in you each day. So thank you once again. I can never say it enough. We inspire you and you keep us afloat. Even a person who doesn't know of the Good News can plainly see God thru all of this pain. I received an email yesterday that put it all in perspective for me...it said "I found you from a friend. Your story caused me to pray. Pray for the first time in so many years."
isn't that amazing. It's not me. It's not Brad, nor Conner, nor Hunter and Bradyn...
It's ONLY GOD...
and it's simply beautiful
happy cinco de mayo to all of you...have a margarita for me... ;)


Thursday, April 15, 2010

a 7th birthday celebration

pictures speak better than any words ever could...here are a few from yesterday

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father and son
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honorary fire fighter of the day...and balloons in his favorite color

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the firefighters brought him his birthday cake
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and loves with mommy
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We had our meeting with the doc today, Brad and i are filling out advanced directives and DNR forms today...and considering admitting him after his bday party this weekend and restart IV's and have meetings with hospice coordinators and social workers.
today his fever is still present. motrin seems to keep him comfortable. i am beyond exhausted at this point and am looking forward to a nap soon.
thank you all for your love and kind words and prayers. Each time I open my email I have over 500 new messages and thats about 3 times a day...so I haven't had time to go thru them all, so even though I know you don't, but please don't take it personally that I haven't gotten back to everyone. But know that I feel so much love and support...
pray.

Did You Know....

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There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).

In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.

From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.

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