Gosh it's been awhile. I can't remember exactly how long but long enough. Life has just been kinda flowing, trying to navigate spring break, cf clinic, iv's, meetings, fighting over cayston, tutoring, the zoo, easter, and family birthdays...(with two more to come in the next few days, but I won't say WHOSE...more on that later) In addition to all of that we got a puppy!!!! And he couldn't have arrived at a better time. Such a great thing for those batteling their health and looking for a great distraction and even a feeling of satisfaction having ONE thing they can truly control. Conner's in heaven. We bought a tiny shih poo pup that doesn't get bigger than 9 pounds, even though I would love a lab (we've always had labs) but I knew I didn't have the time or space to give a lab the home it deserves....so teeny pup works perfectly! Conner named him Grover (his favorite stuffed animal since he was 1 day old! not to mention his dear hospital buddy!) Grover has been a much needed source of unconditional joy and love our family has so desperately needed...
Conner went to clinic on Tuesday and we decided to end his IV's. We know that he doesn't do well without IV's but he needs a break...and goodness i need a break as well. So because he's still sick, and of course always will be...we put him on a two week dose of oral antibiotic and 5 days of prednisone to maybe perk up his lungs. I think the Doc wrote those scripts just to make me feel better...but oh well. I'm just glad to have a little bit of time off. We go back to clinic in two tuesdays from now. And I'm still waiting on cayston...insurance is having a hay-day denying it, but i'm hopeful that it'll arrive soon.
I've been given a few great doctors names and have been contacting them to see what more if anything can be done for Conner, and to get information about compassionate care releases etc. One doc who came highly recommended in Denver called me back the other day and gave me his personal cell phone number to call "anytime" to talk about our situation and what he might be able to help with. Now I just need to put my ducks in a row and figure out just what i want to say and then call him back! it never hurts to try...
This weekend marks the big 3-0 for me...oh joy and then this next wednesday my sweet Conner celebrates his 7th birthday....and that fills my heart with such happiness...to think i was worried if we'd even make it to here...and we almost are!!! I pray as well that this is not his last birthday, but just incase it is we're going to make it EXTRA special for him! Bring his make a wish back to life!!!! Hawaiian luau complete with a volcano cake!
Ive called his teacher today and we've made arrangements for Conner to go to school for half days each wednesday to be with his friends...and wednesdays are the fun days...two recesses, lunch, music, math and computer lab!!!! oh yes and library!!! And this coming wednesday is his first day (if he's well enough) and it couldn't be more perfect...it's his birthday!!!
So for now our lives are flowing...nicely. No drama...no iv's...yes on orals but sheesh that's easy-peesy! and hopefully we'll stay out of the hospital for a long time.
