Terrific/Terrible Tuesday

Conner’s having problems with his breathing today. He’s been laying around all day. Now he’s finally sleeping next to me in my bed. He asked today to restart his IV’s…I’m so glad he made it a week and a day w/o them. He was able to bathe, and be free of IV’s, though he wasn’t really up and walking around at all. Still, emotionally and physically, he got to really ENJOY his days without antibiotics.

But today he says no more…

I called the docs, and either tomorrow or first thing Thursday he will have his PORT accessed with that huge push pin needle in a way that is so brave you’d be SHOCKED…and we’ll restart antibiotics to booster him up. and hopefully help him to feel a bit better for awhile.

Family came to visit from out of town today, my dad and his wife and her grandma from Hawaii, Nana. Nana hasn’t seen Conner since he was maybe 2 or 3. It was a great day for a visit. The little boys played in the pool and had a great time. and mr. conner laid on the couch inside most of the time. He was able to come out and lay on the outdoor couch in the shade for about 20 minutes. so that was nice.

Now he’s sleeping.

And I’m watching him.

closely.

And praying over him.

For peace. For no pain. For breath, deep breaths. and good rest.