Conner’s having problems with his breathing today. He’s been laying around all day. Now he’s finally sleeping next to me in my bed. He asked today to restart his IV’s…I’m so glad he made it a week and a day w/o them. He was able to bathe, and be free of IV’s, though he wasn’t really up and walking around at all. Still, emotionally and physically, he got to really ENJOY his days without antibiotics.
But today he says no more…
I called the docs, and either tomorrow or first thing Thursday he will have his PORT accessed with that huge push pin needle in a way that is so brave you’d be SHOCKED…and we’ll restart antibiotics to booster him up. and hopefully help him to feel a bit better for awhile.
Family came to visit from out of town today, my dad and his wife and her grandma from Hawaii, Nana. Nana hasn’t seen Conner since he was maybe 2 or 3. It was a great day for a visit. The little boys played in the pool and had a great time. and mr. conner laid on the couch inside most of the time. He was able to come out and lay on the outdoor couch in the shade for about 20 minutes. so that was nice.
Now he’s sleeping.
And I’m watching him.
closely.
And praying over him.
For peace. For no pain. For breath, deep breaths. and good rest.
I'm glad he was able to be outdoors for a bit today.
ReplyDeleteI wish I could give some of my big, deep breaths to him.
We continue to pray for him & you (and the rest of the family). Your strength & courage to share all this with us is amazing. My life has been changed forever because of you. I know I will be a little stronger dealing with my cf daughter and be grateful in the present.
ReplyDeleteWhen I read your blog, I think of the song by the Sidwalk Prophets, Be strong in the Lord and,
Never give up hope,
You're going to do great things,
I already know,
God's got His hand on you Except, Sarah, you and Conner are already doing great things.
He has his hand on you and Conner.
May you have a peaceful night.
Trish
I find myself thinking of your family so often. You are an amazing woman and mother.
ReplyDeleteI am so very sorry that you have to endure this. It just isn't fair.
Love from Minneapolis,
Stephanie
Praying the antibiotics do their job and that Conner is able to get some relief from the pain.
ReplyDeleteThinking about you. Always.
ReplyDeleteWhat a very, very brave boy. I'm glad he's made it 8 whole days! What an accomplishment - all things considered. You all are always in my thoughts.
ReplyDeleteLots of love to you all!
I'm constantly checking to see if you've posted an update on your little Connor. He's tough and smart at knowing when he needs his meds. I'm sorry to hear that he's not doing well. He'll push through and feel better with the meds. ♥s
ReplyDeleteSuch a light around so much darkness. So comforted in your faith and the faith of Connor. May God give you peace and confidence in every moment.
ReplyDeleteBlessings