Conner Reed Jones April 14, 2003 to June 24, 2010.
He earned each and every feather on those beautiful angel wings of his...
Breathe free sweetheart...mommy and daddy love you so much....
Friday, June 25, 2010
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Did You Know....
There are over 100,000 people, the size of a small city, on the transplant list in the US.
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
...as he runs freely and breathes easily with Jesus... msy you now rest and heal in His arms, too.
ReplyDeleteAll of my love.
ReplyDeleteBeathe easy sweet Conner.
ReplyDeleteI am so sorry any parent should have to go through this. I wish I had the words to make you feel better but in honesty those words will only come from God. Remember even in his book he tells his people to grieve, remember treasure and love every minute you had with your angel. Thank you for sharing your journey I will forever support CF research.
ReplyDeleteI'm so sorry. Thank you, Sarah, for sharing Conner with us.
ReplyDeleteThinking about your family and sending prayers of peace and love for you during this time of healing. Even though Conner is no longer here he is all around you and will find joy and happiness in all that you do for you are his love you are his family. Cystic Fibrosis is a brutal disease and he was a courageous warrior. Thank you for sharing your story and shedding light on this disease for those that continue on with their fight.
ReplyDelete-Beth
Momma to 5 amazing kids one of which has Cystic Fibrosis.
RIP little Connor, he fought as much as he could and I am glad to hear he is no longer in pain. Enjoy yourself in heaven little guy. Such, such sad news. I hope your strength can carry you through the next few days xx
ReplyDeleteMy heart is breaking for you right now, Sarah. You and your family will continue to be in my prayers. I am so sad for you and hope you know that Conner knew every second of every day how much he was and is loved and cherished. Much love to you.
ReplyDeleteGod bless you and your family. I told you earlier, that my son Johnny might want to show him around Heaven. Our sons are worth every tear we shed. "He fought a good fight and kept the Faith." He will never be forgotten! We continue our Fight for the Cure for this Horrfic Monster called Cystic Fibrosis.
ReplyDelete:O( speechless, my thoughts are with you all right now. At last little Conner is free from all his pain and can breathe
ReplyDeleteFirst time I have read Conners story today....and the news that his battle is done has saddened my heart.....I have watched 2 of my children pass so I know how the grief you now are consumed by is the biggest actual physical pain imaginable.....you are all in my prayers, and I send you my love from overseas....Rest easy lil man your fight is done xxxxx
ReplyDeleteI am so, so sorry. My prayers are with you.
ReplyDeleteYou don't know me but I found your blog through a message board. I am so very sorry for your family's loss.
ReplyDeleteGodspeed Connerman......
ReplyDeleteI am so sorry for your loss. You and your family are in my thoughts and prayers. Connor us protecting you from above.
ReplyDeletexxxxxx ((((((<3))))))
ReplyDeleteMy prayers are with you!
ReplyDeletewords escape me. my heart is simply broken for you. i know that he is safe in the arms of the angels. i've been praying for you all night. had to get up and check on you. we won't forget, sarah. we won't ever forget.
ReplyDeleteThere are no words to make it easier. Your family is still in my thoughts and prayers. Conner will always be a hero in my book. Every picture I saw of him he was always smiling. R.I.P. Conner you will be missed so very much breath easy....
ReplyDeleteWords don't seem appropriate. I am grateful to have "known" Conner for a small time through your words. Thank you for having the courage to share his story - it will forever be held in my heart. Praying for you.
ReplyDeleteKristin
You don't know me, but I've been following Conner's story for a few weeks, after hearing about your brave, brave son's battle on Phoenix's blog.
ReplyDeleteI have been praying for your family, and especially for Conner, whose strength, determination and inspirational attitude are truly incredible.
I have two young children with CF myself (aged 5 and 7), and I am so very sorry that you have had to say goodbye to Conner so soon.
I'm not sure what else to say, except that I'm sure you know that you are being lifted up in prayer all around the world today.
With love,
Rebecca xx
Sarah, I am so deeply sorry for your loss. What an incredible little boy. Peace, peace, peace to you and your family. I will continue to pray for you.
ReplyDeleteIsaiah 41:10 Do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.
I have no words to make this time easier for you. No words of wisdom to ease your pain.
ReplyDeleteMy prayers and thoughts are with you. Conner's strength and inspiration will guide you through this time.
I read y our story for the first time last night. I am deeply touched by your story and I pray that God gives you just as much strength to get through this tragic time as he has for the last 7 years. Many thoughts and prayers from NC to you and your family. May Conner breathe easy and be pain free.
ReplyDeleteMy prayers are with you and your family. Conner is breathing easy in heaven looking down at the strongest parents there are. I'm am so sorry for this loss, no parent should have to go through this. My heart will be with you all day today, I am in tears as I have followed your story.
ReplyDeleteBreathe Easy Conner.
I am so sorry for your loss. There are no words to make this easier. I am at such a loss. Thank you for sharing Conner with us.
ReplyDeleteI continue to pray you and your family.
Sweet Conner breathe easy and enjoy playing with all your new friends. You no longer have to fight.
Thinking of you and your beautiful family, No child should have to go through such troubles in life. Breathe Easy Sweet Boy.
ReplyDeleteYou're all in my thoughts. I'm so sorry that you are going through all of this. I don't even know what to say.
ReplyDeleteBreathe easy Connor. Run, jump, play, fly, and do all the other things you couldn't do while you were here.
I am so very sorry. I know he is no longer in pain, but we can't say the same for you and all that knew and loved Conner. Somehow, some way, I hope you can find some peace.
ReplyDeleteWe have all fallen in love with Conner through your blog and he will be greatly missed by us all. Breathe easy precious Conner, the world loves you! <3 *much love to y'all*
ReplyDeleteI was just introduced to you and your family yesterday via a CF mom I know. I am so sorry for your loss of your beautiful son Conner. My prayers are with you as you travel this next road of sorrow.
ReplyDeleteYou are in our hearts and our thoughts and prayers are with you. Breathe easy, sweet Conner.
ReplyDeleteI am incredibly sorry for your loss!!! Heaven has received a beautiful angel!
ReplyDeleteSo, so sorry! I am in tears for your loss.
ReplyDeleteI'm so sorry. You and your family have my thoughts and love.
ReplyDeleteI can't think of any words that will ease your pain right now Sarah, just know that you will never be alone, little Connor will forever be watching over his Mommy, Daddy and brothers. Now free from any pain, Connor has earned his wings and will be welcomed up above by all other cf heroes that have gone before.
ReplyDeleteThe day will come when we will be reunited once again with our children Sarah, there is no doubt in my mind.
Thinking of you during your time of sorrow.
Sandy
(((hugs)))
Because of you, Conner's struggles where shared around the world. We have laughed and cried by your side. I will look to the heavens today and smile. Conner you are no longer in pain, or struggling for your very breath. May you soar by our sides, and guide us in every breakthrough.
ReplyDeleteHugs cf warrior.
Hugs to you and your family.
ReplyDeleteWe have been blessed by your family and the story of faith interwoven through great heartache. It is the story of the gospel, and you have shared it so well. Know you are loved, and that God has used your family, Conner's life, and your faith in amazing ways. I can't wait to see it all on the other side of Heaven.
ReplyDeleteSending lots of peace and love from Ohio. My heart aches for you and your family but I know now Conner is breathing easy in Heaven.
ReplyDeleteI am so sorry for the loss of your Connor. Losing a child - your firstborn - is just tragic. May he breathe easy now in the arms of Jesus. My many prayers are with you all.
ReplyDeleteYou don't know me but your story touched my heart, thank you for sharing your son with the world. Your family is in my prayers
ReplyDeleteI just read your blog for the first time - I am so, so, so sorry for your loss. I have no words - they all sound so hollow. Your family is in my prayers.
ReplyDeleteMay you find peace and comfort in the knowledge that Conner is now healed, his struggles are over and he is without pain. Thank you for sharing your journey with us - as painful as it was at times. God used you in a very special way and you have ministered to so many. God bless you and your family!
ReplyDeleteI am thinking of you and your family today and hoping you find comfort in wonderful memories.
ReplyDeleteI am so profoundly sorry for your loss. You set a fine example for mothers with ailing children. What a beautiful boy.
ReplyDeletehttp://www.youtube.com/watch?v=0xwzItqYmII
ReplyDeleteI hope in the days, months and years to come Sarah, this song will bring you some comfort as it did for me when I lost my son.
(((hugs)))
Mom to cf angel
I'm so sorry. My heart is breaking for you and your family. No words are adequate! Prayers that you find peace in knowing that Conner was welcomed with open arms by our heavenly Father and is no longer in pain.
ReplyDeleteMy heart aches for you....It is sad that it takes a something like this .... a mother holding on to her child waiting for him to take his last breaths after so many years of fighting, to make parents like me really appreciate our healthy kids who we get so aggravated at for messing up the house and being too loud. What you would not give at this moment to have a messy house full of laughter! Thank you for sharing and making me stop and appreciate what I have!!!! My thoughts and prayers are surely with you today! May God be with you to ease all off your suffering! God Bless you Conner- a boy with such strength will surely get his wings right away!!
ReplyDeleteSo sorry for your great loss. My heart breaks for you and your family.
ReplyDeleteThank you for sharing this journey with us, despite how difficult and gut-wrenching it has been for you. My prayers are with you and your family, but I know Connor is resting in God's embrace now and is no longer suffering.
ReplyDelete(((Hugs)))
Words can't express how sorry I am for your loss. I lost my husband to CF last year, I can't imagine what it has to feel like to lose a child. Breathe easy Conner.
ReplyDeleteYaYa who commented above is my Mom...we have been following you for a while - we lost my brother in 2000 to CF...My heart is in pieces this morning...Godspeed little Conner!!! Listen to this song when you get a free minute...you'll never be the same after you hear it...
ReplyDeletehttp://www.youtube.com/watch?v=eos7FbtuTbo
Sarah...you have done something that many can not by sharing your story and sweet boy with the world...we all Thank you for inviting us to know a soul like your Conner...he will live in our hearts Forever...Like Eva of 65 Red Roses said...LOVE LOVE LOVE!!!
Breathe Easy Conner!!!
I am so sorry for your loss. I can't even begin to imagine how you feel. We are praying for you.
ReplyDeleteI am praying for your family at this time. Your story has touched me and made me aware of the pain and heartbreak of CF.
ReplyDeletebreathe easy sweet Conner...praying for your family
ReplyDeleteBreath easy Conner.
ReplyDeleteThank you Sarah for sharing your story with the world. I can not imagine how it feels to go through all this pain you and your family is in right now and have been for the past few months. Makes me cry.
I hope God will carry you all through this. Conner will always be in my memory as well as Eva that is mentioned above.
Sending you all a cyber hug, there are no words. Only LOVE
<3
I am so very sorry for all your family and conner has had to go through. My prayers are going out to you. Thanks for your words, yours + Conners story.
ReplyDeleteMay your precious angel be with you always. Prayer and thoughts for your family at this most difficult time. So sorry....
ReplyDeleteI'm so sorry for your loss. I'm glad that your connerman is now enjoying perfection...with a perfect body, with a perfect God. I pray you feel God's love and peace. I'm praying for you and your family.
ReplyDeleteMy heart is broken into a million pieces for you, I can't even begin to imagine the pain you are all in. Please know that you and your family are in our thoughts and prayers.
ReplyDeleteI've been reading your blog for a few months now and have never commented. I have a daughter with CF who is 15 months old. My heart is aching with you and for you now. I am so sorry for you loss. May God bless your sweet family.
ReplyDeleteI am so sorry for your loss ((HUGS))
ReplyDeleteHe is being held in Jesus' warm embrace. His suffering has turned to joy with only the smile that you knew best. Praise God that you will see him again someday. My heart aches for you during this unbearable sorrow.
ReplyDeleteRIP Connerman. (((hugs to all of you)))
ReplyDeleteI am SOOO sorry. There are no words to express my feelings. I just pray God give you comfort and strength. (((((((hugs))))))
ReplyDelete((Hugs))) May your memories give you comfort and peace.
ReplyDeleteThank you for sharing your wonderful connerman with us. I ache for you and your family.
CF is so horrible. Its so horrible when a young one passes on so young.
Jacky
Breathe Easy Conner man!! xoxo
ReplyDeleteYou don't know me, but I am a friend of Sonja's, from MN. We have been reading your blog, and are so heartbroken for your loss! As a mom of three boys, and 2 with special needs, I can't imagine the pain of watching what you have. I pray that God, will give you peace, that passes all understanding. Also energy, and the ability to rest, even though I'm sure it seems impossible! You are an inspiration to so many around the country, thank you for sharing Conner with us!
ReplyDeleteLifting you and your family up in prayer.
ReplyDeleteSo sorry for your loss. My family will always keep yours in our prayers. Not sure if this will help you, but I firmly believe that Families Are Eternal, and you WILL be able to hold him, hug him and love him, and watch him grow in the Eternities that follow after the Second Coming.
ReplyDeleteMy boys saw a picture of Conner last night on my computer and wanted to know why he was laying down. After explaining to them that Conner was going to see Jesus, Brahm started to cry. Even though he didn't know Conner, he's reaction is what many of us feel. I only knew Conner really through what you shared but it was enough for us to feel like we knew and love him. We will hold your family in our prayers. Love to you.
ReplyDeleteHi Sarah - you do not know me but I heard about Conner's fight through Margarete Cassalina. A very close friend of mine lost his battle to CF at 22 years old and I thought THAT was too young. A similar fight at age 7 breaks my heart but also inspires me because your son fought as best he could until the end. As they say, its not the size of the dog in the fight but rather the size of the fight in the dog.
ReplyDeleteYou're all in my thoughts and prayers. Stay strong.
Sarah,
ReplyDeleteWords escape me. I'm so sorry for your loss. I'll be thinking about you and Conner and your family in the days, weeks, and months to come.
Sarah:
ReplyDeleteI am so, so sorry for your loss. My heart breaks for you and your family. Praying that God gives you comfort and strength during this time.
I am so very sorry for your loss. keeping your family in our thoughts and prayers as always. Love from us all. Breathe Easy Conner!
ReplyDeleteMy thoughts are with you, I cannot think of any words that can comfort you... but know that there are millions of hearts beating with prayers and wishes for you xx
ReplyDeleteI am so sorry that you just had seven years together on earth to make memories with Conner. May our Heavenly Father hold you and carry your family now and in the future.
ReplyDeleteMy heart goes out to you and your family. Breathe easy, sweet Conner.
ReplyDeleteSending prayers of strength, love and peace to your beautiful family. oxox Elise
ReplyDeleteYour family is soundly in my thoughts and prayers. I just became aware of your family and Connor this morning, but never-the-less, I will pray for you. I just know Connor is up there with my sweet little Hannah, doing the things they always wished they could do on earth!
ReplyDeleteI've never been to your blog before, but one of my friends sent me here today. I'm so sorry for your loss. May you find comfort and peace in the upcoming days knowing your baby boy is finally breathing free.
ReplyDeleteI am so, so sorry for your loss. Thank you for sharing Conner's story with us. I will never forget his sweet smile.
ReplyDelete"And God shall wipe away all tears from their eyes..."
~Revelation 21:4 (KJV)
Sarah,
ReplyDeleteYou have the love, support and prayers of the entire CF community behind you today, and always. We are so grateful that you have allowed us to know and love Conner as our own. By sharing his life and loss with us you have reminded us all to treasure each moment we are allowed to spend with our loved ones here on earth.
What you have done to brought awareness about this devestating disease is incredible. When a cure comes, someday, we will claim in in Conner's name, and in the names of all others that we lost too soon.
We love, you, Sarah. Conner touched us all. Be proud of your little man!
Run and Play, now Conner. It's finally time! We love you!
Breathe easy sweet Conner. We will continue the fight in your honor
ReplyDeleteI am sorry. I know it was "expected" but it still feels sudden. Sigh..... *hugs* many of them! I know you and your husband will pull through.
ReplyDeleteSarah,
ReplyDeleteI'm so sorry to hear of the loss of Conner. What an amazing little man he was and what an amazing mother you are! Thank you for opening many eyes (including mine) to what a terrible thing Cystic Fibrosis is. I honestly had no idea until I started reading your blog. My thoughts are with you and your family.
Breathe easy sweet angel. Your story has touched my heart deeply. Your family is in my thoughts and prayers.
ReplyDeleteMy heart goes out to your family. Breathe easy Conner.
ReplyDeleteNo words, just prayers.
ReplyDeleteI ready your blog for the first time yesterday and prayed for your sweet boy last night - on his last day.
As a mom of baby boys, I know how much you loved him, may you feel God's presence today in your sorrow - and your rejoice that he is free and in Christ's arms right now!
Breath easy little man. Sending love, hugs and strength to you all. You are a wonderful family, my heart breaks for you. xxx
ReplyDeleteI'm just finding your blog and I wanted to say I'm so sorry. I prayed for little Conner last night and hope he can breathe easier now. God bless you.
ReplyDeleteOur thoughts and prayers are with you during this most difficult of time.
ReplyDeletei'm so, so sorry for your loss of your beloved son. i pray that God will continue to give you and your family the STRENGTH to endure these next days, the LOVE to spread to everyone so that each and everyone can feel Conner, the TIME for you, yourself, to grieve and reflect of the wonderful life he had, the EYES to see how you and your husband and the rest of the family, loved and cared for him unconditionally.
ReplyDeleteMay God Bless you and your family.
Love to you all...
Breathe easy conner man. You were a wonderful warrior and inspire me to keep fighting.
ReplyDeleteSending lots of love and prayers to your family.
I am so sorry for your loss. My family has your family in our thoughts.
ReplyDeleteI do not know your family personally but I have been keeping track of these blogs and I'm so sorry for your loss. A comment on a blog doesn't mean much at all but your story and the story of your extremely brave little boy has really touched me as I'm sure it has many other people. My thoughts are with you.
ReplyDeleteSarah, Brad, and Boys,
ReplyDeleteI am praying for peace and comfort for you all. I am so sorry for your loss. I find comfort knowing that Conner can breathe, he can stand next to Jesus and breathe. Love to you all from my me, my family, and my friends.
Today is the first day that I have read your blog. I found it via a friend with CF who posted a tribute to your precious little angel. I am overwhelmed with grief for you. Mother to mother, my heart breaks for you. I am praying for you and will continue. I am so thankful that you know the Lord. How would anyone ever walk through this without Him. Connor IS pain free now, having shed his earthly body, and is with Jesus, but I know your heart is filled with such grief for not having him here in your arms. Thank you for sharing your heart and letting us lift you in prayer.I know you are weary so we will lift you up. Rest.
ReplyDeleteI am so very sorry for your loss. May you find a measure of peace in knowing Connor can be free now.
ReplyDeleteConner captured my heart a few months ago through your awareness video. I prayed for him every day and will continue to pray for your family. Breath Easy little buddy.
ReplyDeleteMy heart is broken for you and your family. We will be praying for peace and comfort for y'all. Thank you for sharing his amazing story. Stay strong. Breathe Easy.
ReplyDeleteAs a mom to 3 boys, I can't begin to imagine your pain. Conner was such an inspiration to me and my 3 boys (I shared his journey with them). I just want you to know that his life and struggle truly helped me to appreciate my boys even more and at times when I felt like I just couldn't go on (going through divorce), I thought of him and I would find strength I never knew I had. What a wonderful gift he gave me! Thank you Conner and thank you Sarah for being such a loving mother and for having the strength to share Conner's story with all of us here. Peace to you and your family.
ReplyDeleteI am so sorry for your loss. I know there are no words to ease the pain your family is experiencing, but I hope you are able to find some comfort in seeing how many lives Conner touched. Praying for your family.
ReplyDeleteBreathe easy Conner.
ReplyDeleteOh Sarah, I have been crying all day for Conner, but I know that he is resting comfortably in God's arms, without pain and finally able to breathe free. I will forever hold your special boy close to my heart. Just looking back on past entries and pictures here reminds me of what a beautiful life you all shared. I hope you can find peace.
ReplyDeletei've been following Conner's story for a while too, and I am so, so sorry..all the sorries in the world can't help too much:(, but all I can say is God bless you and your family. my brother and I have CF and your story touched me tremendously..may Conner rest in peace. xoxo
ReplyDeleteThank you so much for sharing Connor with us.... My thoughts are with you, and your family.
ReplyDeleteBreath easy Connor ....
I just "met" Conner last night, through another friend whose son has CF. We are all so heartbroken for you, and know it's nothing in comparison to the pain you feel. Praying for your comfort.
ReplyDeleteBreathe free, Conner. Please say hello to my grandparents.
Praying for you in Texas!
ReplyDeleteSarah,Brad and family- I am so sorry for your loss. We are still praying for emotional healing for you and your family. I can't imagine what you are going through right now but I know that God will help you through this. All of our love and support and Prayers.
ReplyDeleteJen, and family
This comment has been removed by the author.
ReplyDeleteSarah - I am so so so sorry for your loss. You don't know me, one of my friends shared your blog with me. My son will be 7 in August and my heart is breaking for you. I cannot stop crying - the pain you must have endured... I know nothing I can say will ease your pain. I hope time will ease your sorrow.
ReplyDeleteConner is finally free of pain among the angels. He is watching you from above and KNOWS how much you loved him.
Someone gave me this one time when I was grieving - it gave me comfort:
Do not stand at my grave and weep,
I am not there, I do not sleep.
I am a thousand winds that blow;
I am the diamond glints on snow.
I am the sunlight on ripened grain;
I am the gentle autumn's rain.
When you awaken in the morning's hush,
I am the swift uplifting rush
Of quiet birds in circled flight.
I am the soft star that shines at night.
Do not stand at my grave and cry.
I am not there; I did not die.
May God be with you and your family...
-Danielle
Atlanta, GA
Lots of love and prayers for your family at this time. Thank you so much for sharing with the world this inspiring fight. From a mom who is "new" at CF, you gave me strength. Breath Easy Conner!
ReplyDeleteGod Speed brave little Conner.
ReplyDeleteI have no words...nothing seems right to say...my eyes are blurring with tears....love and strength to you and your family.
xxxxxxxxxxxxxxxxxxxxxxx
My heart melted as I sat and read your last few posts. It is such a comfort to know your sweet, sweet boy is now with Jesus where he is not hurting.
ReplyDeleteBut I know you and your family are hurting something fierce and I will be praying that God's mighty hands are wrap around you and your sweet family.
Ginger~
I am so sorry. I pray you all feel God's arms around you.
ReplyDeleteYou have been such a great mother to Conner.
Blessings to you all,
Kristin
Sarah,
ReplyDeleteI don't know if you remember me or not; Connor was in my daughter Kyleigh's Head Start class in Long Beach. We remember what a brave and amazing boy he was. I'm so sorry for your loss. I wish we could know God's plan, not that it makes it any easier. We are thinking of you and your family and praying for you all.
So sorry for your loss. Poor little baby. He was lucky to have such a wonderful Mom and Dad. God bless....
ReplyDeleteI am so very sorry for your loss. Conner was such a brave soul. You will all be in my prayers.
ReplyDeleteMy heart is breaking for you and your family. Your sweet baby boy will never be forgotton. He is holding onto Jesus right now. I lost my little brother Johnny to Cystic Fibrosis on July 21st 1999. We have to PUSH (Pray Until Something Happens) for the cure! We have to continue in the fight for them. You are in my prayers!
ReplyDeleteI have no adequate words. I pray Christ's comfort, peace and strength for you and your family. I thank you for sharing your family's journey with us. I have no adequate words......
ReplyDeleteSarah,
ReplyDeleteMy heart breaks for you. I do not feel as if I have words enough to comfort. May GOD hold you in HIS arms and provide whatever you need.
My sister-in-law sang this song at our son's dedication. I thought of it as I was reading about Connor. Thank you for sharing your precious gift.
Find Your Wings by Mark Harris
It's only for a moment you are mine to hold
The plans that heaven has for you
Will all too soon unfold
So many different prayers I'll pray
For all that you might do
But most of all I'll want to know
You're walking in the truth
And If I never told you
I want you to know
As I watch you grow
I pray that God would fill your heart with dreams
And that faith gives you the courage
To dare to do great things
I'm here for you whatever this life brings
So let my love give you roots
And help you find your wings
May passion be the wind
That leads you through your days
And may conviction keep you strong
Guide you on your way
May there be many moments
That make your life so sweet
Oh, but more than memories
I pray that God would fill your heart with dreams
And that faith gives you the courage
To dare to do great things
I'm here for you whatever this life brings
So let my love give you roots
And help you find your wings
It's not living if you don't reach for the sky
I'll have tears as you take off
But I'll cheer as you fly
Words of sympathy don't seem enough. One thing I hope you know is that describing your journey and allowing so many of us to "know" Conner goes a very long way in awareness. His life, short as it was, has made a big impact on others. That's a feat very few people can claim. You've helped others and made a difference.
ReplyDeleteHell. I'm so sorry.
ReplyDeleteI heard about your brave son and his struggle thru some of our family who have a 1yr old daughter with CF, yesterday.I read your blog and lived those terrible awful last hours, minutes and seconds with you. I too lost my child to this horrible disease 3 1/2 years ago. My daughter was 16. There are no words..our children should not go first. They should not suffer...they should not struggle through each breathe. He is safe in God's arms, as hard as that is for those that loved him. If I know my daughter, he is probably getting shown around Heaven right now!!!Running free, breathing free!!! Hold on to each other and the memories of the precious time you got to have this angel with you. My heart cries with you. Sending prayers your way.
ReplyDeleteI found Conner's story through my cousin who is living and fighting CF. I am so very sorry that you have had to live this terrible disease. I know there are no words that will ease your pain, I wish there were. My husbands first born daughter had CF, she passed away at 31 years old. My heart is breaking for you and your family. I pray God will carry you through and give you the strength, somehow.....
ReplyDeleteMy heart is breaking for your family.
Sincerely,
Milli Wagoner
My heart is breaking for you...I had only stumbled upon your blog in the last few weeks and had read it through it's entirely. I am so sorry for you loss, no family should have to endure this.
ReplyDeleteI heard about your story through a friend of mine who has CF.
ReplyDeleteI lost 2 brothers and a sister to CF. Reading your blog took me back to those times and reminded me of the heartache and suffering your family must be experiencing right now. I hope that soon you will find peace knowing that Conner is no longer in pain.
I wanted to share a poem with you that was read at my brother's funeral. Somehow it brought me comfort and I hope it can do the same for you.
"I'll lend to you for a little time,
A child of mine," God said,
"For you to love while he lives
And mourn for when he's dead."
"It may be six or seven years
Or twenty-two or three,
But will you till I call him back,
Take care of him for me?"
"He'll bring his charms to gladden you
And should his stay be brief,
You'll have these precious memories
To comfort you through grief."
"I cannot promise he will stay
Since all from earth return.
But there are lessons taught down there
I want this child to learn."
"I've looked this world over,
In my search for teachers true.
In the crowds of this great land,
I have selected you."
"Now will you give him all your love
Not think the labor vain,
Nor hate me when I come to call
To take him back again?"
It seems to me I heard them say,
"Dear Lord, thy will be done.
For all the joys a child shall bring,
The risk of grief we'll run."
"We'll shelter him with tenderness,
We'll love him while we may,
And for the happiness we've known
Forever grateful stay."
"And should the angels call for him
Much sooner than we've planned,
We'll brave the bitter grief that comes
And try to understand."
I'll be honest with you, it's very hard to get through the loss of someone extremely dear and close to you, God knows I have suffered more then I should. But, it's always reassuring that there are plenty of people out there in this massive world of ours that will comfort and care you for this.
ReplyDelete"The wounds may heal, but the pain stays forever"
Sincerly~
Conner Reed of Staten Island