i've poured my heart and soul into this and I pray you can pour your heart and soul into whatever resources you have to help us fight CF and help CF families...
blessings to you....and feel free to post on....
Thursday, April 22, 2010
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Did You Know....
There are over 100,000 people, the size of a small city, on the transplant list in the US.
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
Oh, Sarah.
ReplyDeleteYou touch my soul every day and today is no exception. You are to me so many, many things; a runner of this race, a warrior of this battle...a mother of this child.
Keep your face towards the light of God. Let Him give you more strength to endure. I am watching. I am hoping. I am praying.
xo
k.
Amazing. Truly amazing. I can't thank you enough for sharing all that you do.
ReplyDeleteBeautiful, Sarah. What a tear-jerker.
ReplyDeleteSarah,
ReplyDeleteI am a stranger in CT, who learned of your family from Ronnie Sharpe...
This video has brought me to tears pouring from my heart...My family prays for your family every day.
This video is amazing.
Tara
I am a stranger in Indiana who found you through Kelly's Korner. My daughter and I are praying for you every day.
ReplyDeleteThis video is unbelievable.
Courtney
I learned about your family a week ago from Kristi Bowers and have been checking your blog daily now. I pray for you all daily. I am so sorry you are having to go through everything you are. What a beautiful, special family you have. Thank you for being such a great mom and example to everyone. I definitely feel so blessed to have my 2 year old daughter and I will not complain about anything in my life because your family is in my mind! God bless you and give you strength, peace, and joy.
ReplyDeleteSarah~I stumbled across your blog yesterday via the CF Husband blog.
ReplyDeleteYou & your sweet son & the rest of your precious family are in my prayers.
I don't even have words to express what I am feeling, thinking...knowing I have know idea truly of what you are going thru.
Sending you love.
~Mary (in WA)
((((Hugs))))...I have tears flowing down my cheeks after watching that video. How deeply touching and honest it is, if that doesn't touch people to help fight for CF, then I don't know what would.
ReplyDeleteI have only been following your blog for a short while after it was put up on CF.com's boards and have sat and read nearly every entry, archive and present since. My heart goes out to all of you, you are an amazing woman and mom, Connor is adorable...his courage is clearly evident, the whole family is beautiful.
I have been praying nonstop and keeping all of you in my thoughts and close to my heart.
God bless all of you...
Jenn from NY 38 w/CF
Oh Sarah. I wish had words. I watched through tears, and will watch again.
ReplyDeleteI usually make a montage, but I couldn't this year. Emily didn't want one, because they make her sad. So I didn't. But, the decison not to make one also had a lot to do with finding your blog and reading Conner's story.
There is simply nothing I can say about Emily's fight so far that can compel people to GIVE the way Conner's story can. That's why I asked to use your words at our fundraiser, and that's why I'll be sending a link to your montage to the people who would usually have gotten mine. Everyone with a heart and a dollar to spare NEEDS to see this.
Conner has a kindred spirit in Emily. They both want to be firefighters when they grow up. I think their souls already know they are strong enough to fight anything. And win. Her montage last year was about her dream to becme a firefighter. I'll send you the link.
I hate this disease. I hate it. I will continue to work hard to fight it. For you and for Conner.
Tami
Oh Sarah, that was the most beautiful video I have ever seen. I am donating NOW! And I will post the video on my blog to get friends of mine to donate. Tiffany Anglesey
ReplyDeleteWOW -- you've taken my voice away, its too beautiful and heart wrenching not to respond though. Conner is amazing! And so are you! You are all in my thoughts.
ReplyDeleteI will post and share and urge more donations.
It just takes my breath away. We are walking in our 9th great strides and we will carry your family in our hearts.
ReplyDeleteThis breaks my heart. It is hard to find words. I actually went to highschool with you and found this blog through Lyssa Clynch. You are an amazing mom. I pray for your strength and your family's strength. We will pray for all of you. I found a great strides walk in Huntsville AL that we'll participate in. Sarah (Jones) Whelchel
ReplyDeleteThank you so much, Sarah for sharing your beautiful video. My girls (3 and 5) make a point to pray for "Conner and his family" every day. I pray that God surrounds you and your family in His peace during this difficult time. We don't personally know you and may never meet you, but we love you and will continue to pray for you.
ReplyDeleteSarah, you are an amazing woman. I have been praying for you, Conner, & your family everyday. Two of my nieces have CF so I agree with you that it is a horrible disease that needs a cure! I have passed your video along to all my family & friends to spread the word about raising money for CF. Thank you for all you do! You will always be in my thoughts & prayers.
ReplyDeleteI have taken the liberty of posting your video on my facebook page Sarah. What more of a message can we send out to people that this terrible disease needs a cure?
ReplyDeleteNo parent should ever have to go through what you're going through right now.
Little Connor is in my prayers Sarah.
Sandy
Mom to Matt
((hugs))
A beautiful video.
ReplyDeleteAmazing blog, amazing video, amazing parents and family. Truly incredible little boy. You should be so proud, and know he will always be thankful to you.
ReplyDeleteI am 38 and have CF. I had a transplant last year. I was lucky, I never felt as much pain as Connor. My heart goes out to you and he has touched me deeply.
That Hawaii trip looked incredible!! So Happy for him and all of you to spend that time togeether.
My thoughts are with you and I wish him Peace and Love.
Jason Dolan
This video has brought me to tears. Tears for a little guy that I don't even know because, while I don't know what you guys go through, no one should have to experience the things that Conner has had to. How proud you must be of the way that he has handled all this. He is truly an amazing little boy. I pray that Conner has many, many more good days surrounded by family and friends. You are an amazing mother. I am just in awe.
ReplyDeleteBlessing to you all ~ Julie (a stranger from TN)
This comment has been removed by the author.
ReplyDeleteSarah,
ReplyDeleteI am so sorry to hear about your son, he is truly a special little boy. As a CF patient myself I used to wonder why God allowed me to have this condition, I finally realized that CF gave me the extraordinary opportunity to unite my suffering with Christs suffering on the cross for the benefit of all I love and for the conversion of sinners. When we unite our sufferings with Jesus, it becomes the most powerful prayer one can do! Just imagine all the graces Conner can direct toward people by doing this! You can also do this by uniting your heartache to Christs suffering on the cross for the benefit of mankind, especially sinners who have no-one to pray for them.
I pray for Conner everyday and I know Our Lord is looking out for your special little angel.
BTW, have you asked your doctor about a medication called Mucomyst? It helps break down mucus and works really well for me, it may help alleviate some of Conner's discomfort. I take 2ml of a 20% solution 3x per day via nebulizer.
God bless you and little Conner,
Dan