My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!



Love Love Love

Always Always Always


Friday, December 18, 2009

When the docs say there's nothing else we can do, I go on my own...

So Conner's on every medicine and therapy available for a CF patient...and the Docs have said there is nothing else they can do, and they have even admitted to me, that sometimes they just guess at what to do for him...because they're out of ideas. My son is not a transplant candidate due to having another disease (prune belly syndrome...meaning lack of abdominal muscles) because with PB he can not cough up his CF secretions...making intubation and ventilation too much of a risk for him....fine i'm at peace with that....
but....
that doesn't mean i've stopped when the doctors have given me a red light. they are NOT god, they DON'T know everything, and it is MY son....like my dear friend has said...my son does NOT have a choice to have CF, so I do NOT have a choice but to fight for him...anyway i can. I've been looking ALOT into alternative therapies and natural medicine for him, into chiropractors, supplements you name it...i've googled it all! And I think I've found a winner...
NAC...click here for NAC info because i am NO expert in it all....and just FYI, the article refers to glutithione...and NAC increases the levels of glutithione in the body...so now it should make sense...
so my plan is to try it out when Conner is off Iv's for awhile and get a good sense of what it does. I have found NAC in the "fizzy" form is most effective and can be purchased thru Canada where the supplement is regulated and is pure and guarenteed to contain what the label says it contains, whereas here in the US supplements and herbs are not regulated and they can say one thing on the bottle, and you are NOT at all guarenteed to be getting what the bottle says....

we shall see...but for today I am hopeful....

1 comment:

  1. Keep the faith Sarah! You are an amazing mother who will stop at nothing to help your beautiful son. You are in my prayers!

    ReplyDelete

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