So Conner's on every medicine and therapy available for a CF patient...and the Docs have said there is nothing else they can do, and they have even admitted to me, that sometimes they just guess at what to do for him...because they're out of ideas. My son is not a transplant candidate due to having another disease (prune belly syndrome...meaning lack of abdominal muscles) because with PB he can not cough up his CF secretions...making intubation and ventilation too much of a risk for him....fine i'm at peace with that....
but....
that doesn't mean i've stopped when the doctors have given me a red light. they are NOT god, they DON'T know everything, and it is MY son....like my dear friend has said...my son does NOT have a choice to have CF, so I do NOT have a choice but to fight for him...anyway i can. I've been looking ALOT into alternative therapies and natural medicine for him, into chiropractors, supplements you name it...i've googled it all! And I think I've found a winner...
NAC...click here for NAC info because i am NO expert in it all....and just FYI, the article refers to glutithione...and NAC increases the levels of glutithione in the body...so now it should make sense...
so my plan is to try it out when Conner is off Iv's for awhile and get a good sense of what it does. I have found NAC in the "fizzy" form is most effective and can be purchased thru Canada where the supplement is regulated and is pure and guarenteed to contain what the label says it contains, whereas here in the US supplements and herbs are not regulated and they can say one thing on the bottle, and you are NOT at all guarenteed to be getting what the bottle says....
we shall see...but for today I am hopeful....
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Did You Know....
There are over 100,000 people, the size of a small city, on the transplant list in the US.
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
Keep the faith Sarah! You are an amazing mother who will stop at nothing to help your beautiful son. You are in my prayers!
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