My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!



Love Love Love

Always Always Always


Tuesday, November 9, 2010

Cuddles from Conner Event…

When There’s Nothing Else You can Do for them…

Watching my son deteriorate in front of my eyes was the hardest thing I am sure I will have to face in my lifetime on this earth. Knowing as a mom that I’d done everything that I could but coming to the realization that it would never be enough was devastating. Waking up that final morning June 24, 2010 around 7am and KNOWING that it would be our last day on this earth as a family of a living 5 was horrific.

I’d give anything to comfort him.

I’d do anything possible to make his last 16 hours on this hell we call earth as comfortable as possible.

anything.

But, besides narcotics and hugs and love there wasn’t anything that I could do.

I felt horribly inadequate.

the worst feeling a mother should ever have to face and feel.

he deserved so much more…

I would’ve given him the world that last day…

that is my regret.

not doing every single thing in my power his last little bit of time on this earth to keep him as comfortable as he deserved to be.

he lived his 7 years in such pain, with such grace, begging for comfort, begging for love. always more.

so I’m doing something about it.

for you.

for your sweet “conner” whomever that may be in your life.

this message is two fold.

I’ve recently fell in LOVE with what I consider the softest, most comfortable sheets that anyone could ever own. A fabulous company called Private Quarters specializes in bedding and so much more. My heart is full of love for children, especially ones with chronic illness and especially those headed towards hospice where there is nothing a parent can do any longer for their child but to offer the best comfort they can for their dyeing child.

My friend Kari, who is a PQ consultant, is allowing me an amazing opportunity.

From now thru the end of November and maybe even into December I am raising $ to buy these amazingly soft sheet sets for CF and other chronically ill children who are in end stage, or nearing it, to help their last while on earth be as comfortable as possible. There is a couple ways you can get involved. You can browse the catalog HERE and order and with every $500 (cumulative) order Kari will donate a set of these amazing sheets to a kiddo in need…or you can buy a set of these fantastic sheets and donate them to us to give to a kiddo in need. So you can order for yourself and that total goes towards free sheets for a kiddo, you can buy a set of these fantastic sheets to donate to a kiddo, or you can simply donate any dollar amt you wish to go towards these soft sheets for a kiddo. To buy these sheets to donate to a kiddo CLICK HERE and you can have them shipped to me as the hostess to donate. If you have a kiddo in mind to donate them to please put that as well so we can wrap them and send them off for you with love from Conner :)

serenity-plush-72ppi1

 

We are naming this event Cuddles from Conner. And I’m so excited to be doing this.

So contact me if you would simply like to donate a dollar amount towards a sheet set at sponzoha@hotmail.com and put Cuddles from Conner as the heading/subject. Or click the above link to buy a set of sheets for yourself or donate them to our Cuddles from Conner campaign by having them shipped directly to me, as the hostess.

and…

I have some kiddos in mind to donate these sheets to already but I’m looking for other kiddos who would be blessed by comfort after a lifelong fight against Cystic Fibrosis or another chronic illness. please email me and give me details so we have kids to bless with comfort from Connerman. Please help to make this event successful…spread this around to your friends and family and lets help out!

I just know that watching Conner die that horrible day I wish there was more I could’ve done to comfort him..so I know that by doing this for others it will make it even a teeny bit easier for their parents on that horrific last day as well…

Love Love Love

2 comments:

  1. THE SECOND LINK DOESN'T WORK THAT GOES DIRECTLY TO THE SHEET SET. CLICK THE FIRST LINK THAT SAYS "HERE" THEN CLICK ON BEDDING AND CLICK ON SERENITY PLUSH SHEETS. THOSE ARE THE ONES WE ARE GIVING TO THE KIDS. THEY ARE SO FANTASTICLY SOFT. WE ARE BUYING THE TWIN SIZE ONES THAT ARE $80 EACH. THAT COMES WITH THE PILLOW AND THE FITTED AND FLAT SHEET IN THAT SOFT MATERIAL. THANK YOU SO MUCH FOR YOUR HELP AND FOR PASSING THIS BLOG LINK, ETC ONTO YOUR FRIENDS AND FAMILY
    LOVE LOVE LOVE

    ReplyDelete
  2. so beautiful Sarah. I absolutely love how your mind works or is it how God is working thru you.

    ReplyDelete

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