My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!

Love Love Love

Always Always Always

Tuesday, March 23, 2010

CF clinic was this morning, and we were not admitted. Conner's still sick and so doc put him back on IV's again. i guess at least he got a few days off right? So the rn will be over tomorrow to reacccess his port and get the iv's going, and he's also doing an extra oral antibiotic three times a day and i believe they FINALLY called in a prescription for the Cayston therapy. What a hassle that has been. Guess I'll believe it when it shows up at my door.
Today's one of those wierd days. Had a lot of CF family friends at clinic today and it seemed like everyone I saw had an off day. Full moon maybe? It's very hard to stay positive all the time, and I'm trying my hardest to, but it's a constant fight when you feel so helpless.
But it's a beautiful day/evening and I'll doodle around a bit and get to bed early and maybe it'll help me to be refreshed and ready for tomorrow. Because as we all know tomorrows a new day, and the next opportunity for a miracle...
and Lord if your listening...I'm still waiting on ours...

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Did You Know....

There are over 100,000 people, the size of a small city, on the transplant list in the US.

There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).

In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.

From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.

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