CF clinic was this morning, and we were not admitted. Conner's still sick and so doc put him back on IV's again. i guess at least he got a few days off right? So the rn will be over tomorrow to reacccess his port and get the iv's going, and he's also doing an extra oral antibiotic three times a day and i believe they FINALLY called in a prescription for the Cayston therapy. What a hassle that has been. Guess I'll believe it when it shows up at my door.
Today's one of those wierd days. Had a lot of CF family friends at clinic today and it seemed like everyone I saw had an off day. Full moon maybe? It's very hard to stay positive all the time, and I'm trying my hardest to, but it's a constant fight when you feel so helpless.
But it's a beautiful day/evening and I'll doodle around a bit and get to bed early and maybe it'll help me to be refreshed and ready for tomorrow. Because as we all know tomorrows a new day, and the next opportunity for a miracle...
and Lord if your listening...I'm still waiting on ours...