My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!



Love Love Love

Always Always Always


Monday, March 8, 2010

Resting at home...and a new form of CPT

Well we are home. We got home yesterday (Sunday) afternoon to a house full of sickness. It was so nice to sign those lovely discharge papers from the "clink" and get outta there, but walking into our home was kinda eery. The only healthy one right now is my hubby, and I'm guessing that will be short lived as well. I have this horrible head congestion, sore throat thing thats wiping me out, Hunter, our 4 year old, is still trying to get over his crud which is pretty much what I'm now getting. Our youngest, Bradyn who is 18 months is so sick. Sounds very croupy but with a pretty good fever and a ton of congestion, he is miserable. And this is where I'm trying to get my son all better? He was sent home on 14 days of home IV's, the best schedule we've EVER had! Ceftaz IV every 8 hours, IV Tobi once a day, and oral Doxi once a day. That is easy peasy! But now I'm playing a fun game of 3 child keep away...trying to prevent Conner from catching whatever viral junk this is in our home. I heard today that another strain of the flu is out and heavy here right now...oh joy. I sure hope we don't have that. It'd be a setback that Conner simply can't afford right now.
So I'm trying to rest so I feel better because Thursday is my Chefs Dinner speach for CF. I've had it written for about a month now, but I keep going and modifying it a bit almost daily. I need to feel better for Thursday, cus I'm going to do it no matter how I sound. Gotta raise that money for the CFF.
In other interesting news I will leave you with a picture of our newest form of CPT for Conner. Not to mention that his brothers love it tons too! It really gets Conners oxygen pumping and helps him get lots of coughing and moving that mucus...I highly suggest it! the best part is it's only $200 and not $20,000 like the Vest!
Photobucket

Love
Sarah

2 comments:

  1. argh! just left a comment and blogger ate it!

    1) your last two posts have been, as always, an inspiration to me. thanks for giving me so much to think about and for sharing your great perspective on some of the tougher aspects of severe CF. you're such a gifted writer.

    2) i hope hope hope this is okay, but i linked to your blog from mine tonight -- no repost, just a link and a much-deserved shout out as an inspirational CF mom. if you would like me tot take it down please just let me know and of course i will. your blog has just so touched my heart lately.

    ReplyDelete

Related Posts with Thumbnails

Did You Know....

There are over 100,000 people, the size of a small city, on the transplant list in the US.

There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).

In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.

From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.

click here to join the organ donation registry

BECOME AN ORGAN DONOR, SAVE A LIFE!