Well...
The past few days Conner has had this very random fever only in the evenings. He's done this before, and we couldn't figure out what was going on. He's been on his oral antibiotics for almost the 2 full weeks, with a week off prior to that, and then 2 weeks of orals before that as well...its been a crazy year, he's only had 2 weeks off of extra oral antibiotics or IV's. He is due to end his oral antibiotics tonight. But I think we're not out of the woods just yet.
Yesterday he kept getting progressively worse, and now today he's really out of breath, can't talk much, can't walk much, really can't breathe w/o 3 liters of oxygen lyeing down on the couch. not good. His oxygen rate has been low the past few days as well. I've put in a call to the CF nurse Ben, and I believe we'll be taking Conner back to be admitted to the hospital again. Such a bummer.
See, CF has a way of doing this, trying to destroy plans and our spirits. But little does it know, that I refuse to let it destroy my fight against it. Next Thursday night is the CF Foundations Chefs Dinner where I'm speaking my "hate" speach against CF and I will be there even if we're in the hospital. I will not let CF destroy my fundraising fight against it. no way. no how. While I completely respect CF for the demon that it is, I think it doesn't realize the demon fight in me to bring it to extinction. I think CF doesn't realize the determination us mothers feel to protect our kids no matter the cost, the fight, and no matter the suffering.
I won't pretend that this doesn't hurt us as a family. It will devestate Hunter to be seperated again. It will make going to work almost impossible for my husband. It will bring me to my knees in pain to be away from my family again, and to watch Conner endure this pain. It's going to make it all "real" again. But I know we'll find a way to get thru it. Luckily for us, they have lifted the rule of no siblings on the hospital floor...so maybe the boys can come to visit us and that'll ease this pain and make the transition easier.
Well and more than that, maybe they'll find the perfect combination of medicines to get him well faster, and get us out of there and back home sooner. Nobody knows, only God. and I will just continue to rest in his plan.
I will keep you as updated as I can.
Love
Sarah
Tuesday, March 2, 2010
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Did You Know....
There are over 100,000 people, the size of a small city, on the transplant list in the US.
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
Hugs to my little buddy, Conner.
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