Conner has been on Iv's nearly 2 weeks now. He has been in the hospital since Monday. Since Wednesday night he has been spiking fevers ranging from 102.7-104.5 and the docs are stumped. they've run tons of tests. tons of cultures. 2 xrays, cbc's, blood sugars, viral cultures you name it. no answers.
His sputum is still in the preliminary status and it's showing that he's growing a gram negative bacteria....which is quite interesting. Usually MRSA is our dear friend in both the prelim and the final culture. I know my BFF mrsa will be in the final but we're very curious what this new bug he's growing is. I feel it's pseudomonas again. What a horrible combination, PA and MRSA. I hope that I am wrong. Conner's current IV's both cover gram negative bacteria so he's covered, it's now just a wait and see whats actually in there.
His make a wish was scheduled for Monday-Saturday in Hawaii, the big island. Well, unless these fevers break like NOW that won't be happening. I've been in contact with his wish fairy and his contact at MAW and they ensured me that he can get there, they can make it happen with 24 hours notice. So we know we will get there. we just don't know when.
I am beyond flustered.
I am beyond exhausted.
I'm ready for this nightmare to be over with.
Subscribe to:
Post Comments (Atom)
Did You Know....
There are over 100,000 people, the size of a small city, on the transplant list in the US.
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
Hang in there Sarah! I know that this is the hardest thing ever and that no words are going to comfort you, but continue to remember that you have a support system fighting with you guys! We love you and will continue to pray daily that his fever wil break! God has a plan just keep hanging in there your doing an amazing job.
ReplyDelete