My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!

Love Love Love

Always Always Always

Friday, January 8, 2010

104.5 Fevers means No Make a Wish on Monday

Conner has been on Iv's nearly 2 weeks now. He has been in the hospital since Monday. Since Wednesday night he has been spiking fevers ranging from 102.7-104.5 and the docs are stumped. they've run tons of tests. tons of cultures. 2 xrays, cbc's, blood sugars, viral cultures you name it. no answers.
His sputum is still in the preliminary status and it's showing that he's growing a gram negative bacteria....which is quite interesting. Usually MRSA is our dear friend in both the prelim and the final culture. I know my BFF mrsa will be in the final but we're very curious what this new bug he's growing is. I feel it's pseudomonas again. What a horrible combination, PA and MRSA. I hope that I am wrong. Conner's current IV's both cover gram negative bacteria so he's covered, it's now just a wait and see whats actually in there.
His make a wish was scheduled for Monday-Saturday in Hawaii, the big island. Well, unless these fevers break like NOW that won't be happening. I've been in contact with his wish fairy and his contact at MAW and they ensured me that he can get there, they can make it happen with 24 hours notice. So we know we will get there. we just don't know when.

I am beyond flustered.
I am beyond exhausted.

I'm ready for this nightmare to be over with.

1 comment:

  1. Hang in there Sarah! I know that this is the hardest thing ever and that no words are going to comfort you, but continue to remember that you have a support system fighting with you guys! We love you and will continue to pray daily that his fever wil break! God has a plan just keep hanging in there your doing an amazing job.


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