My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!

Love Love Love

Always Always Always

Monday, January 4, 2010


Well dang it anyway, Conner was readmitted to the childrens hospital today, his CF lung infection got worse despite home IV's and orals. Took my sweet time bringing him in, didn't check him in until 5pm. We were JUST here!!!! We were in the room RIGHT next to us! So doc got a chest xray, the usual blood for all the usual labs and we've switched his iv meds around in hopes that it will work to get him better and get outta here so he can go to hawaii next week for his make a wish trip!

we've changed his breathing treatments around also.

I'm hopeful it will be enough.

I'm just kinda frazzeled!!!!

1 comment:

  1. Hope it's not a long stay!!! Hawaii here you come!!!!



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There are over 100,000 people, the size of a small city, on the transplant list in the US.

There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).

In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.

From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.

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