My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!

Love Love Love

Always Always Always

Tuesday, January 5, 2010

Familiar with Genomycin?!

So Conners dr wants to switch him from inhaled vancomycin to inhaled genomycin for his frequent infections. we tried it inpatient today and phew...i got the WORST headache. during that RT session though he also did his hypertonic saline, which usually doesn't bother me at all even sitting right next to him, so I don't know if it's the combination of the two meds or if it's just the genomycin...
anyone have similiar issues?
We stopped his IV vanco as well and changed it to IV zyvox so we'll see if that works. we've also switched him from VEST to PEP and that seems to help him move more mucus.

make a wish in 6 days....

we shall see if this med switch is enough!!!

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From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.

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