My arms are empty and acheing...

I can’t believe I’m a mother without…

Life has been twisted and turned upside down. As a mother, I had both the wonderful privilege of holding my sweet son as I brought him into this world…and the horrible chore of holding him as he took his last breaths and left this world, at only 7 years old. June 24, 2010 he earned his angel wings, passing away after an inspiring but brief fight against Cystic Fibrosis. Now I live, solely focusing on living a life to get to be with him again in heaven, and to raise awareness for Cystic Fibrosis research. I am dedicated to a cure, not only for my sweet sons legacy but so that other CF families never experience the greatest loss of their lives that we are now facing. My mother’s arms are missing Connerman, yet he still inspires me daily to leave a mark of LOVE on this world…so for you my sweet prince, mommy will try!

Love Love Love

Always Always Always

Sunday, May 23, 2010

a fund has been established...

well...i've been asked a few times to post this on here so as to maximize the donations. this is so very heartbreaking and morbid.
a fund has been started for Conners funeral expenses.
I did not start it.
Another cf mama did that for us, and I have to say that it has lifted an extreme amount of pressure and stress from my husbands and i's shoulders. Last week I started the agonizing process of calling funeral homes and talking costs and options etc and I hung up the phone so discouraged.
here we have been shelling out money for CF expenses for the past 7 years, and a high risk pregnancy for Conner to boot. Money is an issue for us as well from SSI limitations etc. So to know that at least part of the funeral can be covered w/o having to charge up credit cards has lifted a burden. I will post it on this post and add it to my site here as pressure....only gratitude...

we are in the hospital right now, just got in a few hours ago. Conner man is having excruciating pain in his back. We are here to get a head start on pain control with morphine to transfer care home to ourselves or hospice...
we are waiting for xray now, they're going to make sure he doesn't have any stress fractures as well as run urine to rule out the possibility of the kidney stones....
i'm prayerfully hoping that we can make our beach vacation trip from the church this weekend...the goal with the doc is to get in, get his pain under control and go home. so i'll keep you updated....


  1. Sarah, I sense you feel awkward in posting the link to Well, don't. I had seriously considered posting a comment with the link on your blog last week but I didn't want to overstep...

    I'm glad you put it up. I'm glad I could give something. And I know others will feel the same way too. We're rooting for you guys...screaming up at the heavens for the Jones family. Let us do his for you. Let us, please.


  2. I completely admrie you, and I'm very grateful that you posted the link to chipin. I'll be adding to it, just as soon as Andy gets paid again.

    Conner is in my thoughts, and prayers, as always; and so are you and your husband.

    Lots of strength & love,

  3. Hi Sarah,

    You don't know me, but I've been following your blog for a while now. My heart aches for you and your family. I'm so sorry to hear that Conner is in such pain now, and that you have to deal with funeral arrangements while being strong for Conner and the rest of your family.

    My heart goes out to you ... Give Conner a hug from an anonymous friend in Israel


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