well...i've been asked a few times to post this on here so as to maximize the donations. this is so very heartbreaking and morbid.
a fund has been started for Conners funeral expenses.
I did not start it.
Another cf mama did that for us, and I have to say that it has lifted an extreme amount of pressure and stress from my husbands and i's shoulders. Last week I started the agonizing process of calling funeral homes and talking costs and options etc and I hung up the phone so discouraged.
here we have been shelling out money for CF expenses for the past 7 years, and a high risk pregnancy for Conner to boot. Money is an issue for us as well from SSI limitations etc. So to know that at least part of the funeral can be covered w/o having to charge up credit cards has lifted a burden. I will post it on this post and add it to my site here as well...no pressure....only gratitude...
we are in the hospital right now, just got in a few hours ago. Conner man is having excruciating pain in his back. We are here to get a head start on pain control with morphine to transfer care home to ourselves or hospice...
we are waiting for xray now, they're going to make sure he doesn't have any stress fractures as well as run urine to rule out the possibility of the kidney stones....
i'm prayerfully hoping that we can make our beach vacation trip from the church this weekend...the goal with the doc is to get in, get his pain under control and go home. so i'll keep you updated....
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Did You Know....
There are over 100,000 people, the size of a small city, on the transplant list in the US.
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
There were less than 10,000 deceased organ donors in the US last year. (that's a ratio of 1 organ donor to every 10 transplant patients).
In the time it takes you to shower today, 1 new name is added to the US transplant waiting list.
From the time you woke up this morning to the time you wake up tomorrow morning, 18 people will die waiting for their transplant in the US.
click here to join the organ donation registry
BECOME AN ORGAN DONOR, SAVE A LIFE!
Sarah, I sense you feel awkward in posting the link to chipin.com. Well, don't. I had seriously considered posting a comment with the link on your blog last week but I didn't want to overstep...
ReplyDeleteI'm glad you put it up. I'm glad I could give something. And I know others will feel the same way too. We're rooting for you guys...screaming up at the heavens for the Jones family. Let us do his for you. Let us, please.
xo
k
I completely admrie you, and I'm very grateful that you posted the link to chipin. I'll be adding to it, just as soon as Andy gets paid again.
ReplyDeleteConner is in my thoughts, and prayers, as always; and so are you and your husband.
Lots of strength & love,
Chelsea
Hi Sarah,
ReplyDeleteYou don't know me, but I've been following your blog for a while now. My heart aches for you and your family. I'm so sorry to hear that Conner is in such pain now, and that you have to deal with funeral arrangements while being strong for Conner and the rest of your family.
My heart goes out to you ... Give Conner a hug from an anonymous friend in Israel
http://super-bronch.blogspot.com